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        "resumen" => "<p id="spar0005" class="elsevierStyleSimplePara elsevierViewall">Los pacientes con insuficiencia respiratoria cr&#243;nica incluidos en programas de oxigenoterapia y ventilaci&#243;n mec&#225;nica domiciliaria refieren tener habitualmente grandes dificultades para realizar viajes complejos que impliquen diferentes destinos y permanencias prolongadas fuera de su domicilio habitual&#46; Todos ellos tienen en com&#250;n la necesidad de disponer de un equipamiento tecnol&#243;gico m&#225;s o menos sofisticado en casa que limita su libertad de movimientos&#46; Hablamos de los sistemas de oxigenoterapia y respiradores mec&#225;nicos&#46; Dadas las dificultades para viajar en avi&#243;n que tienen este tipo de pacientes&#44; nos planteamos que un crucero ser&#237;a una alternativa ideal al ser el hotel el que se desplaza&#46; Ello facilitar&#237;a la log&#237;stica del viaje&#44; pues s&#243;lo tendr&#237;amos que realizar la instalaci&#243;n de los equipos en un &#250;nico emplazamiento&#46; Con estas premisas hemos organizado hasta la fecha 2 cruceros para enfermos respiratorios cr&#243;nicos&#44; la Expedici&#243;n RESpIRA y el Crucero de la EPOC&#46; En nuestra experiencia&#44; los problemas a los que debemos enfrentarnos a la hora de organizar un crucero para pacientes con insuficiencia respiratoria cr&#243;nica se relacionan con el reclutamiento de pacientes&#44; la financiaci&#243;n del viaje y la elecci&#243;n del itinerario que vamos a realizar&#46; Una vez aclarados estos aspectos&#44; hay que conseguir la autorizaci&#243;n de la compa&#241;&#237;a naviera correspondiente&#44; con el visto bueno de los servicios m&#233;dicos y de seguridad de a bordo&#46; Tras obtener el permiso para poder realizar el crucero y una vez que sepamos cu&#225;ntos pacientes van a viajar&#44; es necesario conocer qu&#233; material vamos a necesitar en t&#233;rminos de n&#250;mero de equipos de oxigenoterapia&#44; respiradores y material fungible y&#44; finalmente&#44; d&#243;nde lo vamos a conseguir&#46; Despu&#233;s s&#243;lo quedar&#225; disfrutar de la excursi&#243;n&#46; La participaci&#243;n de los m&#233;dicos responsables de los programas de oxigenoterapia y ventilaci&#243;n mec&#225;nica domiciliaria es fundamental para transmitir seguridad a los pacientes y garantizar la soluci&#243;n de los problemas t&#233;cnicos y m&#233;dicos que pueden presentarse durante el viaje</p>"
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        "resumen" => "<p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">Patients with chronic respiratory insufficiency who are receiving domiciliary oxygen therapy and mechanical ventilation report great difficulty in taking complex trips involving several destinations and prolonged stays away from home&#46; Such patients share a common need for home equipment whose technology is relatively sophisticated&#44; a condition that limits their freedom of movement&#46; We are referring to systems for delivering oxygen therapy and mechanical respirators&#46; Given that such patients have problems traveling by air&#44; we hypothesized that a cruise would be an ideal alternative&#44; given that travel would take place in the hotel itself&#46; A cruise would facilitate the logistics of the journey&#44; given that the equipment would have to be set up at only one setting&#46; Working with these assumptions&#44; we have thus far organized two cruises for chronic respiratory insufficiency patients&#58; the &#8221;RESpIRA Expedition&#8220; and the &#8221;COPD Cruise&#8220;&#46; Our experience shows that the organizational problems to be coped with are patient recruitment&#44; financing and choice of itinerary&#46; With those aspects clear&#44; organizers must then obtain the authorization of the cruise operator&#44; including the approval of the medical and safety personnel on board&#46; After obtaining permission for the cruise and as soon as the organizers know how many patients will travel&#44; a list of oxygen therapy equipment &#40;respirators and disposable supplies&#41; must be compiled&#46; Finally&#44; equipment suppliers must be found&#46; Afterwards&#44; all that remains is to enjoy the trip&#46; The participation of physicians responsible for domiciliary oxygen therapy and mechanical ventilation programs is essential for making patients feel safe and for assuring solutions for technical and medical problems that might arise&#46;</p>"
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Vol. 39. Issue 6.
Pages 266-273 (June 2003)
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Vol. 39. Issue 6.
Pages 266-273 (June 2003)
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Análisis de los aspectos logísticos y organizativos de un crucero para pacientes con insuficiencia respiratoria crónica. La Expedición RESpIRA y el Crucero de la EPOC
Analysis of logistical and organizational aspects of a cruise for patients with chronic respiratory insufficiency. The RESpIRA Expedition and the COPD Cruise
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10915
S. Díaz Lobatoa,
Corresponding author
sdl01m@nacom.es

Correspondencia: Federico García Lorca, 2, portal 7, 2.° A. 28770 Madrid. España
, S. Mayoralas Alisesa, M.A. Gómez Mendietaa, S. Sanz Baenab, R. Martín Sánchezc, P. Díaz-Agerod
a Servicio de Neumología. Hospital Universitario La Paz. Madrid
b Servicio de Medicina Interna. Hospital Universitario La Paz. Madrid
c Servicio de Cirugía General. Hospital Universitario La Paz. Madrid
d Servicio de Cirugía Torácica. Hospital Universitario La Paz. Madrid. España
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Los pacientes con insuficiencia respiratoria crónica incluidos en programas de oxigenoterapia y ventilación mecánica domiciliaria refieren tener habitualmente grandes dificultades para realizar viajes complejos que impliquen diferentes destinos y permanencias prolongadas fuera de su domicilio habitual. Todos ellos tienen en común la necesidad de disponer de un equipamiento tecnológico más o menos sofisticado en casa que limita su libertad de movimientos. Hablamos de los sistemas de oxigenoterapia y respiradores mecánicos. Dadas las dificultades para viajar en avión que tienen este tipo de pacientes, nos planteamos que un crucero sería una alternativa ideal al ser el hotel el que se desplaza. Ello facilitaría la logística del viaje, pues sólo tendríamos que realizar la instalación de los equipos en un único emplazamiento. Con estas premisas hemos organizado hasta la fecha 2 cruceros para enfermos respiratorios crónicos, la Expedición RESpIRA y el Crucero de la EPOC. En nuestra experiencia, los problemas a los que debemos enfrentarnos a la hora de organizar un crucero para pacientes con insuficiencia respiratoria crónica se relacionan con el reclutamiento de pacientes, la financiación del viaje y la elección del itinerario que vamos a realizar. Una vez aclarados estos aspectos, hay que conseguir la autorización de la compañía naviera correspondiente, con el visto bueno de los servicios médicos y de seguridad de a bordo. Tras obtener el permiso para poder realizar el crucero y una vez que sepamos cuántos pacientes van a viajar, es necesario conocer qué material vamos a necesitar en términos de número de equipos de oxigenoterapia, respiradores y material fungible y, finalmente, dónde lo vamos a conseguir. Después sólo quedará disfrutar de la excursión. La participación de los médicos responsables de los programas de oxigenoterapia y ventilación mecánica domiciliaria es fundamental para transmitir seguridad a los pacientes y garantizar la solución de los problemas técnicos y médicos que pueden presentarse durante el viaje

Palabras clave:
Crucero
Insuficiencia respiratoria crónica
Enfermedad pumonar obstructiva crónica
Oxigenoterapia
Ventilación no invasiva
Ventilación mecánica domiciliaria

Patients with chronic respiratory insufficiency who are receiving domiciliary oxygen therapy and mechanical ventilation report great difficulty in taking complex trips involving several destinations and prolonged stays away from home. Such patients share a common need for home equipment whose technology is relatively sophisticated, a condition that limits their freedom of movement. We are referring to systems for delivering oxygen therapy and mechanical respirators. Given that such patients have problems traveling by air, we hypothesized that a cruise would be an ideal alternative, given that travel would take place in the hotel itself. A cruise would facilitate the logistics of the journey, given that the equipment would have to be set up at only one setting. Working with these assumptions, we have thus far organized two cruises for chronic respiratory insufficiency patients: the ”RESpIRA Expedition“ and the ”COPD Cruise“. Our experience shows that the organizational problems to be coped with are patient recruitment, financing and choice of itinerary. With those aspects clear, organizers must then obtain the authorization of the cruise operator, including the approval of the medical and safety personnel on board. After obtaining permission for the cruise and as soon as the organizers know how many patients will travel, a list of oxygen therapy equipment (respirators and disposable supplies) must be compiled. Finally, equipment suppliers must be found. Afterwards, all that remains is to enjoy the trip. The participation of physicians responsible for domiciliary oxygen therapy and mechanical ventilation programs is essential for making patients feel safe and for assuring solutions for technical and medical problems that might arise.

Key words:
Cruise
Chronic respiratory insufficiency
Chronic obstructive pulmonary disease
Oxygen therapy
Non invasive ventilation
Domiciliary mechanical ventilation
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