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Bibliografía
[1.]
S.C. Fitzsimons.
The changing epimediology of cystic fibrosis.
J Pediatr, 122 (1993), pp. 1-9
[2.]
L.I. Landau.
Cystic fibrosis: transition from paediatric to adult physian's care.
Thorax, 50 (1995), pp. 1031-1032
[3.]
Canadian Pacient Data Registry 1993 National Report,
[4.]
P.A. Lewis, S. Morison, Dodge, et al.
Survival estimates for adults with cystic fibrosis born in the United Kingdom between 1947-1967.
Thorax, 54 (1999), pp. 420-422
[5.]
Cystic Fibrosis Foundation.
Pacient Registry 1998 Annual Data Report, Bethesda, Maryland,, (septiembre de 1999),
[6.]
J.S. Elborn, S.J. Shale, J.R. Briton, et al.
Cystic Fibrosis: current survival and population estimates to the year 2000.
Thorax, 46 (1991), pp. 881-885
[7.]
J.A. Dodge, S. Morison, P.A. Lewis, et al.
Incidence, population and survival of cystic fibrosis in the UK, 1968-1995.
Arch Dis Child, 77 (1997), pp. 493-496
[8.]
P. Lewis.
CF epimediology –population perspective and impact.
Simposium sesion sumaries, pp. 131-133
[9.]
S.P. Conway.
Transition from paediatric to adult-orientated care for adolescents with cystic fibrosis.
Disability and Rehabilitacion,, 20 (1998), pp. 209-216
[10.]
A. Fogarty, R. Hubbard, J. Briton.
International comparison of median age at death from cystic fibrosis.
Chest, 117 (2000), pp. 1656-1660
[11.]
D. Rosen.
Transition from pediatric to adult-oriented health care for the adolescent with cronic ilness or disability.
Adolescent Medicine State of the Art Reviews, 5 (1994), pp. 241-248
[12.]
D.J. Birnkrant, J.J. Hen, R.C. Stern.
The adolescent with cystic fibrosis.
Adolesc Med, 5 (1994), pp. 249-258
[13.]
S.L. Shepherd, M.F. Hovell, I.R. Harwood, et al.
A comparative study of the psycosocial assets of adults with cystic fibrosis and their healthy peers.
Chest, 97 (1990), pp. 1310-1316
[14.]
S. Geiss, S. Hobbs, G. Hammersle-Maerchlein, et al.
Psicosocial factors related to perceived compliance with cystic fibrosis treatment.
J Clin Psychol, 48 (1992), pp. 99-103
[15.]
S. D'Angelo, J. Kanga, C. Yates.
Compliance with chest fisiotherapy in cystic fibrosis.
Pediatr Pulmolol, 8 (1992), pp. 321
[16.]
J. Schultz, A. Muser.
Barriers to treatment adherence in cystic fibrosis.
Pediatr Pulmonol, 8 (1992), pp. 321
[17.]
S.M. Sawyer, M.J. Rosier, P.D. Phelan, G. Bowes.
The self-image of adolescents with cystic fibrosis.
J Adolescent Health, 16 (1995), pp. 204-208
[18.]
J. Madar, D. Smith.
The psicosocial adaptacion of adolescents with cystic fibrosis. Review of the literature.
J Adolesc Health, 10 (1989), pp. 136-142
[19.]
L. Cowen, M. Corey, R. Simons, N. Keenan, J. Robertson, H. Levison.
Growing old with cystic fibrosis: psicosocial adjustement of pacients more than 16 years old.
Psicosomatic Medicine, 46 (1984), pp. 363-365
[20.]
C. Blair, A. Cull, C.P. Freeman.
Psychosocial funcioning of young adults with cystic fibrosis and their families.
Thorax, 49 (1994), pp. 798-802
[21.]
Clinical Practice Guidelines for Cystic fibrosis Committee. Preventive and maintenance care for the Patient With Cystic Fibrosis Cystic fibrosis Foundation 1997. Betheseda, Maryland
[22.]
R. Blum, D. Garell, C.H. Hodgman, et al.
Transition from Child-centered to adult health-care systems for adolescent with Chronic conditions.
J Adolescent Healt, 14 (1993), pp. 570-576
[23.]
J.M. Court.
Issues of transition to adult care.
J Paediatr Child Health, 29 (Supl 1) (1993), pp. S53-S54
[24.]
J. Pérez Frias, E. Pérez Ruiz, R. Santos, C. Olveira, A. Martínez Valverde.
La transferencia desde el punto de vista del pediatra. III Congreso de la Sociedad Valenciana de Neumología. Morella 1996..
Publicación de la Federación Española contra la Fibrosis Quística, 17 (1996), pp. 36-37
[25.]
D.V. Schidlow, S.B. Fiel.
Life beyond pediatrics. Transition of chronically ill adolescents from pediatrics to adult health care systems. Adolescent Medicine.
Med Clin North Am, 74 (1990), pp. 1113-1121
[26.]
A. Salcedo, A. Neira, R. Sequeiros, R. Giron.
Transición de etapa infantil la etapa adulta en fibrosis quística.
An Esp Pediatr, 45 (1996), pp. 455-458
[27.]
S. Magde, S.B. Carr.
Is there a need for a dedicated cystic fibrosis adolescent outpatient service?.
Pediatric Pulmonology, 13 (1996), pp. 338
[28.]
B. Abdale, K. Kuhl, D.E. Tullis.
Evaluation of patient satisfaction with the transition from a paediatric hospital to an adult centre.
Pediatric Pulmonology, 10 (1994), pp. 291
[29.]
S. Nars, C. Campbell, W. Howatt.
Transition program from pediatric to adult care for cystic fibrosis pacients.
J Adolesc Health, 13 (1992), pp. 682-685
[30.]
A. Westwood, L. Henley, P. Willcox.
Transition from paediatric to adult care for persons with cystic fibrosis: pacient and parents perspectives.
J Paediatr Child Health, 35 (1999), pp. 442-445
[31.]
A. Salcedo, M.A. Neira, A. Sequeiros, R. Girón.
Importancia de la creación deunidades de fibrosis quística de adultos.
Arch Bronconeumol, 33 (1997), pp. 247-250
[32.]
C.E. Levers, D. Drotar.
Family and parental functioning in cystic fibrosis.
J Develop Behav Paediatr, 17 (1996), pp. 48-55
[33.]
S. Baine, P. Rosembaum, S. King.
Chronic Childhood illnesses: What aspects of care given do parents value?.
Child Care Health Development, 21 (1995), pp. 291-304
[34.]
J.M. Patterson.
A family systems perspective for working with youth with a disability.
Pediatrician, 18 (1991), pp. 129-141
[35.]
C.L. Willis.
Key transition concerns for adults with cystic fibrosis.
Ped Pulmunol, 10 (1994), pp. 170-171
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