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Registro español de pacientes con déficit de alfa-1 antitripsina: evaluación de la base de datos y análisis de la población incluida
Spanish Registry of Patients With Alpha-1 Antitrypsin Deficiency: Database Evaluation and Population Analysis
Beatriz Laraa,
Corresponding author
, Ignacio Blancob, María Teresa Martínezc, Esther Rodríguezd, Ana Bustamantee, Francisco Casasf, Sergio Cadenasg, José M. Hernándezh, Lourdes Lázaroi, María Torresj, Sergio Curik, Cristina Esquinasd, Francisco Dasíl, Amparo Escribanom, Inés Herreron, Beatriz Martínez-Delgadoñ, Francisco Javier Michelo, Francisco Rodríguez-Fríasd, Marc Miravitllesd
a Respiratory Medicine Department, Coventry and Warwickshire University Hospital, Coventry, Warwickshire, Reino Unido
b Coordinador del Registro Español de pacientes con déficit de alfa-1 antitripsina, Fundación Española de Pulmón. Respira. SEPAR, Barcelona, España
c Servicio de Neumología, Hospital Universitario Doce de Octubre, Madrid, España
d Servicio de Neumología, Hospital Universitari Vall d’Hebron, CIBER de Enfermedades Respiratorias (CIBERES), Barcelona, España
e Servicio de Neumología, Hospital Sierrallana, Torrelavega Cantabria, España
f Unidad de Gestión Clínica de Neumología, Complejo Hospitalario Universitario de Granada, Granada, España
g Servicio de Neumología, Hospital Clínico Universitario de Salamanca, Salamanca, España
h Servicio de Neumología, Hospital General de La Palma, La Palma, Canarias, España
i Servicio de Neumología, Hospital Universitario de Burgos, Burgos, España
j Servicio de Neumología. Hospital Universitario Álvaro Cunqueiro. EOXI, Vigo, España
k Servicio de Neumología, Complejo Hospitalario de Navarra, Pamplona, España
l Fundación INCLIVA, Valencia, España
m Servicio de Pediatría, Hospital Clínico Universitario de Valencia, Valencia, España
n Hospital Clínico Miguel Servet, Zaragoza, España
ñ Departamento de Genética Humana, Instituto de Investigación de Enfermedades Raras, Instituto de Salud Carlos III, Madrid, España
o Servicio de Neumología, Hospital Universitario de Donostia, San Sebastián, País Vasco, España
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ISSN: 03002896
Original language: Spanish
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