Original Articles
Health-Related Quality of Life of Patients Receiving Home May Mechanical Ventilation: The Spanish Version of the Severe Respiratory Insufficiency Questionnaire
José Luis López-Camposa,
, Inmaculada Faildeb, Antonio León Jiméneza, Fernando Masa Jiménezc, Emilia Barrot Cortésd, José María Benítez Moyae, Rut Ayerbe Garcíaf, Wolfram Windischgg
Corresponding author
lcampos@separ.es
Correspondence: Dr. J.L. López-Campos. Avda. Reina Mercedes, 35, 6.° D. 41012 Sevilla. España
Correspondence: Dr. J.L. López-Campos. Avda. Reina Mercedes, 35, 6.° D. 41012 Sevilla. España
a Sección de Neumología y Alergia, Hospital Universitario Puerta del Mar, Cádiz, Spain
b Área de Medicina Preventiva y Salud Pública, Universidad de Cádiz, Cádiz, Spain
c Servicio de Neumología, Hospital San Pedro de Alcántara, Cáceres, Spain
d Unidad Médico-Quirúrgica de Enfermedades Respiratorias, Hospitales Universitarios Virgen del Rocío, Sevilla, Spain
e Servicio de Neumología, Hospital Universitario Virgen Macarena, Sevílla, Spain
f Servicio de Neumología, Hospital Juan Ramón Jiménez, Huelva, Spain
g Abt, Pneumologie, Universitätsklinikum Freiburg, Freiborg, Germany
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López-Campos. Avda. Reina Mercedes, 35, 6.° D. 41012 Sevilla. España" ] ] ] ] "pdfFichero" => "main.pdf" "tienePdf" => true "fechaRecibido" => "2005-11-10" "fechaAceptado" => "2006-05-23" "PalabrasClave" => array:2 [ "en" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Key words" "identificador" => "xpalclavsec154214" "palabras" => array:3 [ 0 => "Quality of life" 1 => "Home mechanical ventilation" 2 => "Cross-cultural studies" ] ] ] "es" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Palabras clave" "identificador" => "xpalclavsec154213" "palabras" => array:3 [ 0 => "Calidad de vida" 1 => "Ventilación mecánica domiciliaria" 2 => "Estudios transculturales" ] ] ] ] "tieneResumen" => true "resumen" => array:2 [ "en" => array:1 [ "resumen" => "<span class="elsevierStyleSectionTitle">Objective</span><p class="elsevierStyleSimplePara elsevierViewall">Home mechanical ventilation is used with patients with severe, chronic respiratory failure, a condition that has a serious impact on quality of life. the aim of this study was to produce a translation and cultural adaptation of the Severe Respiratory Insufficiency. Questionnaire for the Spanish population, the first health-related quality of life questionnaire specifically designed for patients receiving home mechanical ventilation.</p> <span class="elsevierStyleSectionTitle">Methods</span><p class="elsevierStyleSimplePara elsevierViewall">Four bilingual German-Spanish translators were used to translate and back-translate the questionnaire. Meetings were held with the translators following each step of the translation process to produce a single version that could be used in the next step. At the end of the process, the questionnaire was piloted to assess its comprehensibility. A scoring system using a scale of 1 (lowest) to 10 (highest) was used to rate both translation difficulty and the naturalness of the language produced. the equivalence of the original and translated items was also evaluated.</p> <span class="elsevierStyleSectionTitle">Results</span><p class="elsevierStyleSimplePara elsevierViewall">Three Spanish versions of the questionnaire were produced. Task difficulty was rated as quite low: the mean (SD) ratings were 1.4 (0.6) for translation and 2.2 (1.1) for back translation. the naturalness of the translated items was rated as very high, with scores improving with the successive versions (version 1, 8.4; version 2, 8.7; version 3, 9.1; <span class="elsevierStyleItalic">P</span><.001). Thirty of the questionnaire items (61.2%) were judged to be fully equivalent, 13 (26.5%) to be similar, and 6 (12.2%) to be non-equivalent. the meaning conveyed by 5 of the items was changed or clarified during piloting.</p> <span class="elsevierStyleSectionTitle">Conclusions</span><p class="elsevierStyleSimplePara elsevierViewall">The translation of the questionnaire using the translation—back-translation procedure has produced a version that is both comparable to the original and accessible to the Spanish population. Its validity is currently being tested in a multicenter study.</p>" ] "es" => array:1 [ "resumen" => "<span class="elsevierStyleSectionTitle">Objetivo</span><p class="elsevierStyleSimplePara elsevierViewall">La ventilación mecánica domiciliaria se aplica a pacientes con insuficiencia respiratoria crónica y grave, lo que tiene un impacto considerable en su calidad de vida. El objetivo de este trabajo ha sido realizar una traducción y adaptación transcultural para la población española del cuestionario Severe Respiratory Insuficiency (SRI), el primer cuestionario de calidad de vida relacionada con la salud específico para estos pacientes.</p> <span class="elsevierStyleSectionTitle">Métodos</span><p class="elsevierStyleSimplePara elsevierViewall">Intervinieron 4 traductores bilingües alemán-español siguiendo el método de la traducción y retrotraducción. Después de cada paso se realizaron reuniones con los traductores para obtener una versión única antes de continuar. Al final del proceso se realizó una prueba piloto para valorar su comprensibilidad. El proceso de traducción se evaluó en dificultad y naturalidad, mediante una escala entre 1 (mínimo) y 10 (máximo), así como en equivalencia de los ítems con la versión original.</p> <span class="elsevierStyleSectionTitle">Resultados</span><p class="elsevierStyleSimplePara elsevierViewall">Se obtuvieron 3 versiones en español. La dificultad de la traducción fue considerablemente baja para la traducción (media ± desviación estándar) 1,4 ± 0,6) y la retrotraducción (2,2 ± 1,1). La naturalidad de los ítems fue muy elevada y mejoró con las sucesivas versiones (versión 1: 8,4; versión 2: 8,7; versión 3: 9,1; p < 0,001). Se catalogaron como totalmente equivalentes 30 ítems (61,2%), 13 (26,5%) fueron similares y 6 (12,2%) no fueron equivalentes. Durante la prueba piloto se matizaron 5 ítems.</p> <span class="elsevierStyleSectionTitle">Conclusiones</span><p class="elsevierStyleSimplePara elsevierViewall">La traducción del cuestionario siguiendo el método de la traducción-retrotraducción ha dado una versión española equiparable a la original y asequible para los pacientes. Actualmente se está llevando a cabo la validación del cuestionario mediante un estudio multicéntrico.</p>" ] ] "bibliografia" => array:2 [ "titulo" => "REFERENCES" "seccion" => array:1 [ 0 => array:1 [ "bibliografiaReferencia" => array:14 [ 0 => array:3 [ "identificador" => "bib1" "etiqueta" => "1" "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "Evaluación de la calidad de vida" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:2 [ 0 => "E Velarde-Jurado" 1 => "C Ávila-Figueroa" ] ] ] ] ] "host" => array:1 [ 0 => array:1 [ "Revista" => array:6 [ "tituloSerie" => "Salud Publica Mex." 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| Year/Month | Html | Total | |
|---|---|---|---|
| 2024 November | 3 | 3 | 6 |
| 2024 October | 27 | 22 | 49 |
| 2024 September | 40 | 33 | 73 |
| 2024 August | 53 | 44 | 97 |
| 2024 July | 18 | 23 | 41 |
| 2024 June | 31 | 33 | 64 |
| 2024 May | 41 | 42 | 83 |
| 2024 April | 20 | 21 | 41 |
| 2024 March | 19 | 22 | 41 |
| 2024 February | 20 | 20 | 40 |
| 2023 October | 0 | 2 | 2 |
| 2023 September | 0 | 1 | 1 |
| 2023 July | 2 | 4 | 6 |
| 2023 March | 3 | 1 | 4 |
| 2023 February | 13 | 15 | 28 |
| 2023 January | 18 | 35 | 53 |
| 2022 December | 16 | 27 | 43 |
| 2022 November | 14 | 20 | 34 |
| 2022 October | 23 | 31 | 54 |
| 2022 September | 8 | 23 | 31 |
| 2022 August | 24 | 41 | 65 |
| 2022 July | 19 | 35 | 54 |
| 2022 June | 13 | 50 | 63 |
| 2022 May | 20 | 35 | 55 |
| 2022 April | 13 | 19 | 32 |
| 2022 March | 16 | 38 | 54 |
| 2022 February | 20 | 32 | 52 |
| 2022 January | 15 | 29 | 44 |
| 2021 December | 12 | 40 | 52 |
| 2021 November | 19 | 47 | 66 |
| 2021 October | 18 | 47 | 65 |
| 2021 September | 21 | 57 | 78 |
| 2021 August | 16 | 32 | 48 |
| 2021 July | 22 | 32 | 54 |
| 2021 June | 19 | 30 | 49 |
| 2021 May | 25 | 25 | 50 |
| 2021 April | 60 | 85 | 145 |
| 2021 March | 38 | 19 | 57 |
| 2021 February | 11 | 15 | 26 |
| 2021 January | 8 | 18 | 26 |
| 2020 December | 9 | 8 | 17 |
| 2020 November | 11 | 14 | 25 |
| 2020 October | 17 | 13 | 30 |
| 2020 September | 15 | 8 | 23 |
| 2020 August | 10 | 8 | 18 |
| 2020 July | 8 | 17 | 25 |
| 2020 June | 5 | 6 | 11 |
| 2020 May | 15 | 15 | 30 |
| 2020 April | 18 | 26 | 44 |
| 2020 March | 11 | 6 | 17 |
| 2020 February | 16 | 23 | 39 |
| 2020 January | 10 | 27 | 37 |
| 2019 December | 12 | 14 | 26 |
| 2019 November | 11 | 14 | 25 |
| 2019 October | 14 | 8 | 22 |
| 2019 September | 20 | 9 | 29 |
| 2019 August | 7 | 4 | 11 |
| 2019 July | 8 | 11 | 19 |
| 2019 June | 6 | 8 | 14 |
| 2019 May | 8 | 9 | 17 |
| 2019 April | 15 | 7 | 22 |
| 2019 March | 12 | 14 | 26 |
| 2019 February | 3 | 7 | 10 |
| 2019 January | 4 | 10 | 14 |
| 2018 December | 5 | 17 | 22 |
| 2018 November | 33 | 10 | 43 |
| 2018 October | 35 | 23 | 58 |
| 2018 September | 5 | 8 | 13 |
| 2018 August | 1 | 0 | 1 |
| 2018 May | 9 | 2 | 11 |
| 2018 April | 6 | 5 | 11 |
| 2018 March | 4 | 2 | 6 |
| 2018 February | 3 | 7 | 10 |
| 2018 January | 6 | 7 | 13 |
| 2017 December | 5 | 8 | 13 |
| 2017 November | 8 | 7 | 15 |
| 2017 October | 3 | 6 | 9 |
| 2017 September | 4 | 6 | 10 |
| 2017 August | 6 | 8 | 14 |
| 2017 July | 4 | 3 | 7 |
| 2017 June | 8 | 15 | 23 |
| 2017 May | 4 | 3 | 7 |
| 2017 April | 2 | 6 | 8 |
| 2017 March | 1 | 4 | 5 |
| 2017 February | 1 | 3 | 4 |
| 2017 January | 1 | 1 | 2 |
| 2016 December | 11 | 8 | 19 |
| 2016 November | 11 | 3 | 14 |
| 2016 October | 25 | 11 | 36 |
| 2016 September | 11 | 11 | 22 |
| 2016 August | 13 | 3 | 16 |
| 2016 July | 17 | 4 | 21 |
| 2016 May | 1 | 0 | 1 |
| 2016 March | 1 | 0 | 1 |
| 2016 February | 5 | 0 | 5 |
| 2016 January | 1 | 0 | 1 |
| 2015 December | 3 | 0 | 3 |
| 2015 October | 77 | 15 | 92 |
| 2015 September | 71 | 5 | 76 |
| 2015 August | 73 | 9 | 82 |
| 2015 July | 137 | 7 | 144 |
| 2015 June | 71 | 5 | 76 |
| 2015 May | 80 | 3 | 83 |
| 2015 April | 49 | 15 | 64 |
| 2015 March | 83 | 6 | 89 |
| 2015 February | 43 | 4 | 47 |
| 2015 January | 52 | 4 | 56 |
| 2014 December | 54 | 5 | 59 |
| 2014 November | 69 | 8 | 77 |
| 2014 October | 78 | 10 | 88 |
| 2014 September | 82 | 10 | 92 |
| 2014 August | 65 | 14 | 79 |
| 2014 July | 44 | 10 | 54 |
| 2014 June | 57 | 6 | 63 |
| 2014 May | 110 | 9 | 119 |
| 2014 April | 96 | 6 | 102 |
| 2014 March | 73 | 6 | 79 |
| 2014 February | 68 | 9 | 77 |
| 2014 January | 45 | 9 | 54 |
| 2013 December | 46 | 11 | 57 |
| 2013 November | 39 | 3 | 42 |
| 2013 October | 52 | 8 | 60 |
| 2013 September | 53 | 11 | 64 |
| 2013 August | 41 | 15 | 56 |
| 2013 July | 46 | 11 | 57 |
| 2013 June | 26 | 7 | 33 |
| 2013 May | 33 | 4 | 37 |
| 2013 April | 20 | 7 | 27 |
| 2013 March | 6 | 2 | 8 |
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